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Las experiencias de los pacientes con PMR: una revisión de la literatura narrativa cualitativa

Max Yates^1,2, Janice Mooney³, Pratyasha Saha^1,2

¹Norwich Medical School, University of East Anglia, Norwich, UK.

Rheumatology advances in practice

|February 11, 2026

Resumen

Las experiencias de los pacientes con polimialgia reumática (PMR) a menudo se pasan por alto y difieren de las opiniones clínicas. Comprender las perspectivas de los pacientes sobre el manejo de la enfermedad, especialmente con respecto al tratamiento con glucocorticoides y los términos recaída y remisión, es crucial para mejorar la atención.

Área de la Ciencia:

Reumatología Reumatología.
La investigación cualitativa es una investigación cualitativa.
Resultados informados por los pacientes.

Sus antecedentes:

La polimialgia reumática (PMR) es una afección inflamatoria común que causa dolor / rigidez en el hombro y la cadera.
Las experiencias de los pacientes con PMR son poco exploradas y a menudo contrastan con las perspectivas del clínico.
La investigación existente carece de profundidad en las opiniones de los pacientes sobre la "recaída" y la "remisión" en la RMP.

Objetivo del estudio:

Explorar las experiencias y puntos de vista de los pacientes sobre el manejo de la polimialgia reumática (PMR).
Investigar las perspectivas de los pacientes sobre conceptos clínicos clave como "recaída" y "remisión" en la RMP.
Identificar las brechas entre las definiciones clínicas y las experiencias de los pacientes en PMR.

Principales métodos:

Se realizó una búsqueda exhaustiva de la literatura en cuatro bases de datos electrónicas.
Se identificaron y seleccionaron estudios cualitativos que informaban sobre las experiencias de los pacientes con PMR.
Se empleó una síntesis temática para integrar los hallazgos de cinco estudios incluidos.

Principales resultados:

Surgieron tres temas generales: el camino hacia el diagnóstico, la gestión de la incertidumbre y los desafíos para la vida cotidiana.
Los pacientes informaron retrasos en el diagnóstico y respuestas complejas a los glucocorticoides ("espada de doble filo").
Las descripciones de los pacientes de "recaída" y "remisión" a menudo divergieron de las definiciones clínicas.

Conclusiones:

El manejo de la PMR presenta desafíos únicos, particularmente con el uso a largo plazo de glucocorticoides.
Existe una brecha significativa entre la terminología clínica y las experiencias de los pacientes en la RMP.
Los hallazgos subrayan la necesidad de enfoques más centrados en el paciente en la atención y el apoyo de PMR.

Palabras clave:

El PMR es el PMR.El diagnóstico diagnóstico diagnóstico diagnóstico.Los glucocorticoides también.las experiencias del paciente con las experiencias del paciente.

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