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Explorando las experiencias de los cuidadores con incertidumbre diagnóstica durante una hospitalización: un estudio
Emily Kramer1, Anna Kerr2, Suzanne Reed3
1Division of Hospital Medicine, Department of Pediatrics, Nationwide Children's Hospital/Ohio State University College of Medicine, 611 E. Livingston Ave, Columbus, OH 43205.
Academic pediatrics
|February 11, 2026
Resumen
Los cuidadores quieren una comunicación clara sobre el diagnóstico incierto de su hijo durante las rondas centradas en la familia. Proporcionar un plan claro y el manejo de los síntomas ayuda a superar la incertidumbre diagnóstica.
Área de la Ciencia:
- Medicina hospitalaria pediátrica para niños.
- La investigación cualitativa es una investigación cualitativa.
- Atención centrada en el paciente y la familia.
Sus antecedentes:
- Los hospitalarios pediátricos frecuentemente manejan niños con síntomas no diagnosticados.
- La comunicación de la incertidumbre diagnóstica durante las rondas centradas en la familia se entiende mal.
- Las perspectivas de los cuidadores sobre la comunicación de incertidumbre son cruciales para la atención centrada en el paciente.
Objetivo del estudio:
- Para explorar las percepciones de los cuidadores de la comunicación con respecto a la incertidumbre diagnóstica.
- Comprender las experiencias de los cuidadores durante las rondas centradas en la familia para niños con diagnósticos inciertos.
Principales métodos:
- Estudio cualitativo utilizando 15 entrevistas semiestructuradas con cuidadores.
- Realizada en un hospital infantil de cuidado cuaternario.
- Análisis temático de las transcripciones de las entrevistas para identificar temas clave.
Principales resultados:
- Surgieron siete temas: contexto del cuidador, expectativas, comunicación en equipo, dinámicas interprofesionales, planes de cuidado, tiempo y alianza terapéutica.
- Las experiencias de los cuidadores se asignaron a un modelo de diagnóstico, destacando las áreas de mejora.
- La comunicación efectiva y un plan claro son vitales para manejar la incertidumbre.
Conclusiones:
- Comprender las experiencias de los cuidadores es clave para mejorar la comunicación sobre la incertidumbre diagnóstica.
- La incertidumbre diagnóstica es compleja, pero puede mitigarse mediante el manejo de los síntomas y un plan definido.
- Una comunicación clara y un plan sólido pueden ayudar a las familias a navegar por la incertidumbre del diagnóstico.
Palabras clave:
El diagnóstico diagnóstico.La incertidumbre La incertidumbre.cualitativo y cualitativo.Más Videos Relacionados
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