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Necesidades de información no satisfechas de los pacientes con cáncer: ¿saben los médicos qué pacientes necesitan
Andrea Bonacchi1,2, Francesca Chiesi3,4, Carlotta Tagliaferro3,4
1Centro Studi e Ricerca Synthesis, Associazione di Promozione Sociale Sul Sentiero, Florence, Italy. andreabonacchi2016@gmail.com.
Resumen
Los pacientes con cáncer a menudo tienen necesidades de información no satisfechas, particularmente con respecto al pronóstico. Los médicos luchan por predecir estas necesidades, destacando la necesidad de herramientas de autoinforme del paciente para un apoyo efectivo a la atención del cáncer.
Área de la Ciencia:
- Oncología Oncología.
- Apoyo al paciente Apoyo al paciente.
- Psicología de la salud Psicología de la salud
Sus antecedentes:
- Es posible que los profesionales de la salud no identifiquen con precisión las necesidades únicas de apoyo de los pacientes.
- La comprensión de las necesidades de información del paciente es crucial para la atención personalizada del cáncer.
- Investigaciones anteriores no han explorado completamente la brecha entre las necesidades reportadas por los pacientes y las percepciones del clínico.
Objetivo del estudio:
- Para evaluar las necesidades de información no satisfechas en pacientes con cáncer en Italia.
- Explorar la asociación entre las necesidades de información de los pacientes y las creencias de los médicos sobre la provisión de información.
- Identificar los factores asociados con mayores necesidades de información en pacientes con cáncer.
Principales métodos:
- Un estudio transversal que involucró a 782 pacientes con cáncer en seis departamentos de oncología italianos.
- Los pacientes completaron el cuestionario de evaluación de necesidades, una escala de sentido de coherencia y una escala de angustia psicológica.
- El análisis de datos incluyó análisis correlacionales y de regresión para explorar asociaciones.
Principales resultados:
- Más de la mitad (54%) de los pacientes con cáncer deseaban más información sobre su pronóstico.
- Las mayores necesidades de información se relacionaron con la hospitalización, el aumento de la angustia psicológica y el menor sentido de coherencia.
- Las percepciones de los médicos sobre los niveles de información y concienciación de los pacientes no se correlacionaron con las necesidades de información expresadas por los pacientes.
Conclusiones:
- Una proporción significativa de los pacientes con cáncer en Italia reportan necesidades de información no satisfechas.
- Existe una desconexión notable entre las necesidades de información expresadas por los pacientes y las evaluaciones de los médicos.
- Las herramientas de evaluación de autoinforme son esenciales para identificar y abordar con precisión los requisitos de información del paciente en oncología.
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