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Mejores palabras: reimaginando la experiencia médica en las revistas de cáncer y "Los exámenes de empatía"
1Boston University, Boston, United States. mlboyd@bu.edu.
The Journal of medical humanities
|February 21, 2026
Resumen
Audre Lorde y Leslie Jamison reimaginan el expediente médico centrándose en las experiencias de los pacientes. Su trabajo ofrece nuevas herramientas narrativas para comprender y ser dueño de los viajes médicos, mejorando el empoderamiento del paciente.
Área de la Ciencia:
- Las Humanidades Médicas.
- La Medicina Narrativa es una Medicina Narrativa.
- Defensa de los pacientes.
Sus antecedentes:
- Los registros médicos a menudo simplifican las complejas experiencias corporales.
- Las narrativas de los pacientes son cruciales para la comprensión de la enfermedad.
- El discurso médico existente puede no capturar completamente las realidades de los pacientes.
Objetivo del estudio:
- Para analizar cómo Audre Lorde y Leslie Jamison re-imaginan el expediente médico.
- Para explorar su uso del lenguaje emocional y corporal en la documentación de la enfermedad.
- Para demostrar cómo su trabajo expande las posibilidades narrativas para los pacientes.
Principales métodos:
- Análisis textual comparativo de los Diarios del Cáncer de Audre Lorde y "Los exámenes de empatía" de Leslie Jamison.
- Examen de las estrategias narrativas utilizadas para contrarrestar la simplificación del discurso médico.
- Centrarse en el paciente como el narrador principal de su experiencia encarnada.
Principales resultados:
- Lorde y Jamison amplifican la voz del paciente centrando el lenguaje emocional y encarnado.
- Sus escritos desafían la naturaleza sistemática y simplificadora de los registros médicos tradicionales.
- Proporcionan modelos para reformular herramientas narrativas para comprender las experiencias corporales.
Conclusiones:
- Los Cancer Journals y "The Empathy Exams" amplían las opciones narrativas para los pacientes.
- Estas opciones ampliadas permiten a los pacientes comprender mejor y ser dueños de sus experiencias médicas.
- Su trabajo pone de relieve la importancia de la narrativa en la navegación de las instituciones médicas y discursos.
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