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Participación del Consumidor en la Investigación de Afecciones Crónicas: Un Marco Integrado Informado por la Teoría

Mingming Zhou¹, Anne Parkinson¹, Leanne Watts²

¹National Centre for Epidemiology and Population Health (NCEPH), Australian National University (ANU), Canberra, Australian Capital Territory, Australia.

Health expectations : an international journal of public participation in health care and health policy

|February 23, 2026

Resumen

Este estudio desarrolló un marco para mejorar la participación del consumidor en la investigación de afecciones crónicas. Enfatiza el reconocimiento a través de elementos relacionales, estructurales y simbólicos para una participación ética y sostenible.

Área de la Ciencia:

Investigación en Servicios de Salud; Participación de Pacientes y Público; Manejo de Enfermedades Crónicas

Sus antecedentes:

La participación efectiva del consumidor es crucial para la relevancia y el impacto de la investigación en salud.; Los marcos existentes para involucrar a los consumidores en la investigación de afecciones crónicas son limitados y carecen de base teórica.

Objetivo del estudio:

Desarrollar un marco integrado y basado en evidencia para apoyar la participación del consumidor en la investigación de afecciones crónicas.

Principales métodos:

Se integraron los hallazgos de una revisión de alcance de recursos basados en evidencia y un marco de reconocimiento co-diseñado.; Se utilizó la teoría del reconocimiento de Honneth (dominios relacional, estructural y simbólico) como lente analítico.

Principales resultados:

El marco desarrollado destaca cómo el reconocimiento relacional, estructural y simbólico fomenta una participación del consumidor ética y sostenible.; El reconocimiento relacional genera confianza; el reconocimiento estructural integra la participación en los sistemas; el reconocimiento simbólico valida la experiencia del consumidor.

Conclusiones:

El marco integrado proporciona una herramienta basada en evidencia para diseñar e implementar la participación del consumidor en la investigación de afecciones crónicas.; Reconocer las contribuciones del consumidor como éticas, estructurales y simbólicas avanza las prácticas participativas y la equidad en la investigación.; El marco es transferible a otros entornos de investigación con adaptación.

Palabras clave:

afecciones crónicas participación del consumidor remuneración del consumidor marco investigación en salud participación de pacientes y público teoría del reconocimiento

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