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Principios de afirmación de la neurodiversidad en el tratamiento oncológico: un estudio de caso de experiencia vivida
Rebecca Trevethick1, Simon Baron-Cohen2, Elizabeth Weir2
1no affiliation.
Psycho-oncology
|February 24, 2026
Resumen
La atención del cáncer presenta desafíos únicos para los pacientes neurodivergentes. Este estudio identifica barreras y ofrece recomendaciones para la atención oncológica neuroinclusiva, enfatizando la comunicación, el entorno y los cambios sistémicos.
Área de la Ciencia:
- Oncología
- Estudios de Neurodiversidad
- Accesibilidad a la Atención Médica
Sus antecedentes:
- Los protocolos de atención del cáncer pueden ser desafiantes para las personas neurodivergentes debido a la complejidad y el estrés.
- Existe una falta significativa de literatura y comprensión sobre la atención oncológica neuroinclusiva.
- Se necesitan adaptaciones para apoyar eficazmente a los pacientes neurodivergentes en entornos oncológicos.
Objetivo del estudio:
- Identificar las barreras y desafíos que enfrentan los pacientes neurodivergentes en la atención del cáncer.
- Desarrollar recomendaciones neuroinclusivas específicas para oncología para los proveedores de atención médica.
- Promover prácticas de atención neuroafirmantes en oncología.
Principales métodos:
- Se utilizó un enfoque de estudio de caso, centrándose en la experiencia vivida de una persona neurodivergente con cáncer de mama en etapa IV.
- Se combinaron perspectivas personales y profesionales con datos publicados.
- Se generaron recomendaciones en seis dominios de atención.
Principales resultados:
- Las principales barreras incluyen el conocimiento limitado del proveedor, la conciencia y la tolerancia de la neurodivergencia.
- Se identificaron adaptaciones insuficientes para las dificultades estándar de la práctica asistencial.
- Las recomendaciones cubren la comunicación con el paciente, los entornos físicos, el manejo del dolor, la administración, la tecnología y las revisiones sistémicas.
Conclusiones:
- Existe una necesidad crítica de atención oncológica neuroafirmante y una mayor conciencia entre los proveedores de oncología.
- La capacitación neuroinclusiva para todo el personal de atención médica es esencial, integrada en los programas de posgrado y el desarrollo profesional.
- Se necesita capacitación y investigación co-diseñadas, junto con el desarrollo de pautas basadas en evidencia para la atención oncológica neuroinclusiva.
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