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«Dar más tiempo a las personas y tomarse el tiempo para explicar las cosas adecuadamente»: Experiencias de cribado

Iva Strnadová^1,2,3, Julie Loblinzk Refalo^1,3, Rosalie Power⁴

¹School of Education, Faculty of Arts, Design and Architecture, University of New South Wales, Sydney, New South Wales, Australia.

Journal of applied research in intellectual disabilities : JARID

|February 26, 2026

Abstracto

Background:

People with intellectual disability have 70% lower cervical screening participation rates. Limited research has captured their experiences, particularly in Australia.

Methods:

This qualitative study used inclusive co-production and trauma-informed approaches. Eleven people with intellectual disability (aged 26-65) from New South Wales participated in semi-structured interviews and arts-based body mapping, analysed using reflective thematic analysis.

Findings:

Four themes emerged: (1) healthcare interactions ranged from empowering to traumatic, with communication failures and rushed procedures; (2) tensions around informed consent and support roles; (3) gaps in accessible information and systematic reminders and (4) how past trauma and competing health priorities influenced screening. Participants recommended Easy Read materials, adequate appointment time, trauma-informed care and genuine choice in healthcare decisions.

Conclusions:

Women with intellectual disability encounter systematic barriers to cervical screening encompassing communication failures, inadequate consent and lack of trauma-informed care. Their recommendations provide actionable solutions for healthcare reform.

Palabras clave:

autonomía cribado cervical comunicación sanitaria discapacidad intelectual atención informada sobre el trauma

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