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Perspectivas de los veteranos sobre la comunicación de enfermedades graves sobre la progresión de la enfermedad
Allison V Lange1,2, Caroline Tietbohl3,4, Robert P Klocko2
1Division of Pulmonary and Critical Care, Rocky Mountain Regional VA Medical Center, Aurora, CO 80045, United States.
Military medicine
|February 27, 2026
Resumen
Los veteranos con enfermedades pulmonares crónicas desean una comunicación clara sobre la progresión de la enfermedad y el manejo diario. Abordar las lagunas de información y la desconfianza es crucial para la comunicación de enfermedades graves (SIC) y la planificación de la atención futura.
Área de la Ciencia:
- Medicina Pulmonar
- Comunicación de la Salud
- Experiencia del Paciente
Sus antecedentes:
- La comunicación de enfermedades graves (SIC) implica conversaciones complejas sobre la comprensión, los valores y las decisiones del paciente.
- La comunicación efectiva sobre la progresión de la enfermedad pulmonar es vital para los pacientes con enfermedades pulmonares crónicas.
- La comprensión de la interpretación del paciente de la comunicación del médico sobre la progresión de la enfermedad es actualmente desconocida.
Objetivo del estudio:
- Explorar cómo los pacientes con enfermedades pulmonares crónicas experimentan la comunicación sobre la trayectoria futura de la enfermedad.
- Comprender cómo esta comunicación influye en la comprensión de la enfermedad por parte de los pacientes.
Principales métodos:
- Se realizaron entrevistas semiestructuradas con los participantes.
- Se utilizó el análisis de contenido para analizar las transcripciones de las entrevistas.
- Los participantes fueron veteranos diagnosticados con enfermedad pulmonar obstructiva crónica (EPOC), enfermedad pulmonar intersticial (EPI) y/o hipertensión pulmonar.
Principales resultados:
- Los pacientes carecían de conocimiento sobre futuras exacerbaciones y deseaban información sobre la vida diaria, las causas, los resultados de las pruebas y el pronóstico.
- La desconfianza relacionada con los posibles vínculos entre las exposiciones militares y las afecciones pulmonares fue una preocupación importante.
Conclusiones:
- Los veteranos con enfermedades pulmonares crónicas presentan necesidades de información insatisfechas sobre exposiciones, etiología y manejo de la enfermedad.
- La investigación futura debe centrarse en el desarrollo de estrategias para satisfacer las necesidades de comunicación de enfermedades graves de los veteranos.
- Mejorar la comunicación puede mejorar la comprensión del paciente y apoyar la planificación futura de la atención.
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