関連する実験動画
Updated: Jul 23, 2026
07:37
Assessment and Communication for People with Disorders of Consciousness
Published on: August 1, 2017
口頭での同意のオーディオ・ビジュアル・ドキュメント: 文盲の住民のための知的な同意の新しい方法
Oscar Benitez1, Dominique Devaux, Jean Dausset
1Guarani Indians Project, Paris, France. benitezoscartheo@aol.com
Lancet (London, England)
|April 30, 2002
まとめ
読み書きができない人々から情報に基づいた同意を得ることは,非常に難しいことです. この研究は,様々なコミュニティにおける倫理的研究のための実行可能な方法として,口頭での同意のオーディオビジュアル文書を導入します.
科学分野:
- バイオエシック バイオエシック
- 医学人類学 医学人類学
- 遺伝学 遺伝学とは
背景:
- インフォームド・コンセントは,ヒトの研究倫理において極めて重要です.
- 伝統的な書面による同意は,文盲の住民にはアクセスできません.
- 非識字コミュニティにおける同意の文書化に問題がある.
研究 の 目的:
- 口頭での同意のオーディオ・ビジュアル文書を評価する.
- 遺伝子研究における文盲集団に対する適性を評価する.
- 標準的な倫理的手続きとして提案する.
主な方法:
- 口頭による同意のオーディオビジュアル文書 (ビデオ,オーディオテープ,写真) です.
- グアラニ・インディアン・プロジェクトでの応用,遺伝子研究.
- パラグアイのGuarani参加者向けに適応したインフォームド・コンセント・プロセス.
主要な成果:
- 約100人の潜在的参加者のうち42人の同意を得ました.
- オーディオ・ビジュアル・メソッドは,拒否の行使を容易にした.
- 潜在的な参加者の半数以上が,拒否の自由を行使することができました.
結論:
- 口頭での同意のオーディオ・ビジュアル・ドキュメンテーションは,文盲の人々にとって実用的な方法です.
- この方法は,倫理的な研究の実施を保証し,参加者の自律性を尊重します.
- それは,様々な研究環境で,書面による同意の実行可能な代替案を提供します.
キーワード:
生物医学および行動研究
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