肝臓移植を受けた小児の健康擁護者への介入の共同制作 ヒト中心のデザイン
Telly Cheung1, James E Squires2, Bethany Bautista1
1Department of Pediatrics, Division of Pediatric Gastroenterology, Hepatology, and Nutrition, University of California, San Francisco, San Francisco, California, USA.
まとめ
小児の肝臓移植のケアに新しいナビゲーターの役割が設けられ,社会的なリスクに対処し,家族のリソースへのアクセスを改善することに焦点を当てました. この役割は,介護のギャップを埋めて,介護者を支援し,サービスを調整することによって患者の結果を向上させることを目的としています.
科学分野:
- 小児医療の提供
- 移植医学
- 医療サービス研究
背景:
- 医療制度は不平等を減らすために ナビゲーターをますます利用しています
- 小児の肝臓移植におけるナビゲーション戦略は,まだ十分に研究されていない.
- 社会的なリスクは 肝臓移植を受けた小児の家族に大きな影響を与える.
研究 の 目的:
- 子どもの肝臓移植のナビゲーターの役割を 人間中心のデザインで設計する
- ナビゲーターのサポートを必要とする 介護者と移植チームを特定する
- 肝臓移植を受けた小児のケアギャップと社会的なリスクに対処するため
主な方法:
- 人間中心のデザイン方法論です
- 仮想のフォーカスグループで 10人の介護者と6人の移植医がいます
- フォーカスグループでの転記を質的に分析して 重要な職務を特定する.
主要な成果:
- 介護者は低所得,貧困,財政的ストレスを報告しました.
- 介護者はコミュニティのリソース,ヘルスケアチームの関係,予約の準備,学校のコミュニケーション,文化的違いの助けを求めました.
- 移植チームは,社会経済的なニーズ,予約の調整,文化/言語的に一致する介護のナビゲーターの援助を求めました.
結論:
- 小児の肝臓移植のプロトタイプが設計されました
- このナビゲーターの役割は 介護者や移植チームの両方の 特定されたニーズに対応します
- 将来の研究で 移植後の結果に 導師の役割が与える影響を評価すべきです
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