"私たちだけ" 暫定的なチューブ栄養による家族の経験 展望的な縦断調査
Claire Reilly1,2, Jeanne Marshall1,2, Jasmine Foley1
1School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Queensland, Australia.
まとめ
暫定的なチューブで子どもを養う親は 継続的な支援を必要とします 準備ができていないと感じたり 家庭でチューブで子どもを養うことが 困難になるからです 不確実性から専門知識へと進化し 専門家の支援や仲間からの支援を 絶えず求めています
科学分野:
- 小児保健医療
- 家族 の 介護
- 心理社会的な支援
背景:
- 暫定 的 な 給食 管 を 使っ て 退院 する 子供 の 数 は 増加 し て いる.
- これらの管を管理する家族に対する心理的社会的な影響は十分に研究されていない.
- 家族 の 必要 を 理解 する こと は,介護 を 改善 し,介護 者 の 負担 を 軽減 する ため に 極めて 重要 です.
研究 の 目的:
- 暫定的なチューブで子どもを育てる 親の経験を調査する
- チューブで飼育する過程の課題と変化するニーズを特定する.
主な方法:
- 縦断的な質的記述デザイン
- 親の参加者は4ヶ月間にわたって日記と半構造面接を完了しました.
- インタビューと日記データを誘導的に分析する.
主要な成果:
- 子供がチューブで食事をする過程で 家族は継続的な支援を必要とします
- 両親は準備ができていないと報告し,チューブ栄養管理で持続的な課題に直面しています.
- 両親は最初は不確実な立場から 独学的な専門性へと進化し 絶えず支援を必要としたのです
結論:
- 構造的な教育と一貫したフォローアップを含む,体系的な改善が必要である.
- 臨床専門知識と支援は 家族にとって不可欠です
- これらのニーズに対処することで 家族の福祉と臨床的成果を向上させることができます
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