関連する実験動画

Updated: Sep 10, 2025

A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
08:42

A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research

Published on: July 31, 2017

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小児自閉症学習保健ネットワークのデータ収集とアクセスに関する好み

Donna S Murray1, Julia S Anixt1, Vijay Vasudevan2

  • 1Division of Developmental & Behavioral Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Department of Pediatrics, Cincinnati, OH.

Journal of developmental and behavioral pediatrics : JDBP
|August 21, 2025
PubMed
まとめ

親や臨床医を含む患者レジストリのエンドユーザの優先順位を理解することは,学習医療ネットワークにおけるデータ収集と使用の改善の鍵です. 家族による直接的なデータアクセスと 明確な臨床的利点により 参加とケアが向上します

キーワード:
結果データ患者によって報告されたアウトカム (PRO)品質改善 (QI) レジストリ

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