心臓病に対する産前カウンセリング:理解とコミュニケーションのギャップの認識

Katherine J DeWeert¹, Melissa K Cousino², Sunkyung Yu²

¹Department of Pediatrics, University of Michigan, Ann Arbor, MI, USA. kadeweer@med.umich.edu.

Journal of perinatology : official journal of the California Perinatal Association

|August 21, 2025

まとめ

胎児先天性心疾患 (CHD) の診断に関する親の理解は,多くの点で医師の認識と一致しています. しかし,妊産婦のカウンセリング後の死亡率と長期的な結果に関する知識のギャップは依然として存在します.

科学分野:

小児心臓科
胎児医学
医学教育

背景:

生まれながらの心臓病 (CHD) に関する産前カウンセリング後の親の理解に関する研究は限られている.
胎児の心臓病の診断に関する親の知識の評価は,情報に基づいた意思決定に不可欠です.
医者と親の理解の合致を評価することが重要です

研究の目的:

胎児の心臓病の診断に関する親の知識の評価
医者と親の理解の評価の一致性を評価する.
産前CHDのカウンセリングにおける知識のギャップを特定する.

主な方法:

心臓病と診断された胎児の両親に投与されたペア調査
診断,治療,合併症に関する親の知識の評価
同等性を測定するために使用されるGwetの合意係数 (GAC).

主要な成果:

診断 (GAC 0. 89),新生児手術 (GAC 0. 81) および終身ケア (GAC 0. 66) について良好な一致性が見られた.
心臓病学者は死亡率と神経発達リスクに対する親の理解が高いと認識しました
死亡率 (GAC - 0. 04) と神経発達の結果 (GAC 0. 05) に関する親の知識は乏しかった.

結論:

親の知識は一般的に心臓病のカウンセリングの多くの側面について心臓科医の認識と一致しています.
死亡率と長期的な結果に関する親の理解に関するコミュニケーションのギャップが特定されました.
妊娠前科疾患のカウンセリングにおける知識の不足に対処するために,コミュニケーション戦略の改善が必要である.

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