オール・オブ・アーズ・リサーチ・プログラムの社会メディアへの普及: 混合的方法分析
Dennis J Zhang1, Michael G Bentz2, Janet K Shim3
1Department of Biological Sciences, Columbia University, 1212 Amsterdam Ave, New York, NY, 10027, United States.
Journal of medical Internet research
|August 22, 2025
まとめ
オール・オブ・アーズ・リサーチ・プログラム (AoURP) は ソーシャル・メディアを使って 様々な参加者を募集していますが メッセージングでは 医療の格差を 解決する方法が 明確ではありません 研究被害とデータ不平等に対する 制度的責任について懸念がある.
科学分野:
- 精密医療
- デジタルヘルス・アウトリーチ
- 健康 格差 研究
背景:
- オール・オブ・アーズ・リサーチ・プログラム (AoURP) は,デジタル・アウトリーチを利用して多様な参加を目指しています.
- 代表が不足しているグループに対する実用的な利益と,研究による損害に対する機関による説明責任について懸念が生じています.
研究 の 目的:
- AoURPの"多様性"の概念化とソーシャルメディアの実装を検証する.
- 代表が少ない人材を募集する際の 声援メッセージの活用を分析する.
主な方法:
- 380件のAoURPのソーシャルメディア投稿 (2020-2021) の混合方法分析.
- "生物医学研究における代表不足" (UBR) のカテゴリーと異議申し立ての種類 (個人対連帯) についてコード化されています.
- 利益,共通の目標,不正義に関連する言語のためのUBR対象の投稿のテーマ分析.
主要な成果:
- "人種と民族" (49%) と"年齢" (19%) は,ソーシャルメディアで最も強調されたUBRカテゴリーでした.
- 募集の呼びかけには,個人の利益 (遺伝的結果),コミュニティの利益 (病気の傾向),共通の目標 (健康の改善),格差の解決が含まれていました.
結論:
- AoURPのソーシャル・メディアのメッセージは 団結の呼びかけと一致していますが 懸念を提起しています
- 参加と健康格差の対処の間の明確な関連性や,データ格差における制度的役割の不完全な認識が指摘された.
- 能力強化のレトリックは,不平等を修正する負担を参加者に負わせる可能性があり,将来のアウトリーチには慎重に検討する必要があります.
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