Hidradenitis Suppurativaの患者向けオンラインリソース:体系的な検索と分析
Emily Sheetz1, Aryn A Alanizi1, Joshua Edwards1
1Eastern Virginia Medical School, 721 Fairfax Ave, Norfolk, VA, 23507, United States, 1 6106099276.
JMIR dermatology
|August 22, 2025
まとめ
この研究では,hidradenitis suppurativa (HS) に関するオンライン情報の品質と読みやすさを評価した. 多くのHSのウェブサイトには包括的で信頼できるコンテンツがなく 患者の理解と共同意思決定を妨げています
科学分野:
- 皮膚科
- 医療情報学
- 医療 コミュニケーション
背景:
- 信頼性の高いオンラインの健康情報は 患者の教育と共有された意思決定に不可欠です
- ヒドラデニティス・スプーラティブ (HS) は,情報に基づいた管理を必要とする慢性炎症性皮膚疾患です.
- 患者はオンラインで情報を検索するので ウェブサイトの質を評価することが必要です
研究 の 目的:
- Hidradenitis suppurativa (HS) に関するウェブサイトの品質と読みやすさを評価する.
- HS患者や医療従事者のための 信頼できるオンラインリソースを特定する
- 患者の知識と医師と患者のコミュニケーションを改善するためのこれらのリソースの可能性を評価する.
主な方法:
- 情報の質を評価するためにDISCERNを活用した.
- テキストの複雑さを測定するためにFlesch-Kincaid可読性テストを適用しました.
- グーグルとBingでHidradenitis suppurativa (HS) に関連するウェブサイトを検索しました
主要な成果:
- DISCERNとFlesch-Kincaidのメトリックを使用してHSのウェブサイトの品質と読みやすさを評価しました.
- オンラインのHS情報の質と理解性において重大な変動が確認されました.
- HS患者の教育に より信頼性があり 入手可能な資料が必要だと強調した.
結論:
- 公に公開されている多くのHSウェブサイトは,最適でない品質と読みやすさを提供しています.
- オンラインのヘルスケア・リソースの改善は 患者の理解を高め 治療に関する情報に基づいた議論を支援します
- 患者中心の高品質な情報を開発し,広めるにはさらなる研究が必要です.
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