暫定的なチューブで子どもを養う親の経験と洞察
Claire Reilly1,2, Jeanne Marshall1,2, Rebecca Packer1
1School of Health & Rehabilitation Sciences, The University of Queensland, Brisbane, QLD, Australia.
まとめ
両親は一時的なチューブケアに満足していると報告しましたが,一部では継続的な心理的社会的な影響を経験しました. 栄養管で育った子供,特に自宅で出院した子供には,支援と教育が求められます.
科学分野:
- 小児科
- 子どもの健康
- 親 の サポート
背景:
- 暫定的な栄養管は小児科の治療において一般的です.
- 親の経験とこれらの介入に対する満足度は完全に理解されていません.
研究 の 目的:
- 暫定的なチューブで 栄養を摂る必要のある 子供の親の経験について説明します
- 介護と支援の課題と改善すべき分野を特定する
主な方法:
- 鬱 症,不安,ストレス スケール (DASS-21),重度の栄養失調症の小児評価スケール (PASSFP) を用いた44人の親の調査
- 満足度と経験に関するオープンな質問を含みます.
- 記述的統計と誘導的内容分析を用いた分析
主要な成果:
- ほとんどの親はケアに満足していると報告し,57%は5日以内にチューブを外した.
- チューブで帰宅した子供 (16%) は食事の難しさが多かった.
- 特定されたテーマ:チューブ栄養と保健サービスでの経験.
- 両親は意思決定と介護に より深く関わりたいと願った.
結論:
- 両親は一般的に前向きだが 継続的な医療と心理的社会的な影響を指摘した.
- 親のサポートと教育は 暫定的なチューブで栄養を摂る子供にとって 極めて重要です
- 特にチューブで帰宅した子供についてはさらなる研究が必要である.
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