神経発達障害の子どもと主介者の参加に関する合意:出席,関与,重要視される活動
Lin-Ju Kang1,2, Mats Granlund3,4,5, Karina Huus3,5,6
1Graduate Institute of Early Intervention, College of Medicine, Chang Gung University, Taoyuan, Taiwan.
Disability and rehabilitation
|August 25, 2025
まとめ
神経発達障害 (NDD) を患っている子供とその介護者は,参加に関して軽度から中等度の合意を示しました. 子供たちは社会的活動と学習を優先し 目標を設定する際の視点の必要性を強調しました
科学分野:
- 小児労働療法
- 発達心理学
- 子どもの健康に関する研究
背景:
- 神経発達障害 (NDD) の子どもは 独特の参加のニーズと展望を持っています
- NDDを患っている子どもと 介護者の間の合意は 効果的な介入と目標設定に不可欠です
- 現存する研究では 子供と介護者が参加をどのように捉えているのかという微妙な違いが 完全に捉えられていないかもしれません
研究 の 目的:
- NDDを患っている子どもと 主要な介護者との間で 認知された参加の出席と関与に関する項目レベルの合意を調査する.
- NDDの子どもと介護者が 重要な活動を選ぶ方法の違いを特定する.
- 小児の集団における共同目標設定のための治療戦略を伝える.
主な方法:
- NDD (6~12歳) の143人の子どもと130人の主介介護者は,別々にPicture My Participation (PmP) ツールを完了しました.
- 加重カッパ係数と絶対的合意は,出勤と関与に関する子育て者の合意を評価するために計算された.
- 子供と介護者が最も重要だと判断した活動の頻度が分析されました.
主要な成果:
- NDDの子供と介護者の間で,出席と関与の認識において,軽度から中等度の合意 (κ = 0. 10 0. 48) が観察されました.
- NDDの子どもたちは 介護者よりも 社会的活動や 介護や 個人的なケアや 学校での学習を 重要視しています
- 重要な差異は,知覚された参加の優先順位の違いを強調しています.
結論:
- 目標設定のプロセスに 子供の視点を取り入れる必要性を強調しています
- 医療従事者は,子どもと介護者の参加に関する見解のギャップを埋めるために, 適したツールと戦略を活用すべきである.
- 参加目標の共同構築を促進するには,これらの異なる認識を認識し,対処する必要があります.
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