占領下のパレスチナ領土で同じ慢性または重症な病気を患っている子どもを一人以上世話している親の経験:定性的な研究
Maha Atout1, Intima Alrimawi2, Abd Al-Hadi Hasan3
1Faculty of Nursing, Philadelphia University, Amman, Jordan.
まとめ
占領下のパレスチナ地域 (OPT) の親は重症児の世話をする上で大きな課題に直面しています. 感情的,身体的,社会的支援サービスが これらの家族にとって不可欠です.
科学分野:
- 小児保健医療
- 質的健康研究
- 社会医学研究
背景:
- 占領下のパレスチナ領土 (OPT) の資源の限度と複雑な政治状況により,子どもの病気のケアを理解することが必要になります.
- OPTでは,生命を制限する,または生命を脅かす状態の複数の子供を管理する親の経験に関する知識に重大なギャップがあります.
研究 の 目的:
- 慢性疾患や重症児の世話をする OPTの親の体験を調査する
- これらの家族の課題とニーズを特定し,その社会的・政治的背景の中で支援する.
主な方法:
- 半構造面接を用いた質的記述的研究
- OPTのトゥルカルムとラマッラーの小児科の 16人の親から収集されたデータです.
- テーマ分析は,親の経験で繰り返されるパターンやテーマを特定するために使用されます.
主要な成果:
- 7つの大きなテーマが出現しました 人生の大きな変化 第二の子供の病気の影響 回復力を育てる 支援システムへの依存 経済的困難 社会的な汚名 社会的孤立です
- 両親は 深い感情的・身体的負担を 報告しました
- 既存の支援システムは,複雑なニーズを満たすには不十分でした.
結論:
- OPTの親に対する 感情的・身体的な支援を 緊急に必要としています
- 文化に敏感な社会サービスは 慢性的に病気の子供が複数いる家族が 直面する重大な負担を軽減するために不可欠です
- 政策の介入は,OPTのユニークな文脈の中で家族支援構造の強化に焦点を当てなければならない.
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