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Updated: Apr 30, 2026

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Assessment and Communication for People with Disorders of Consciousness
Published on: August 1, 2017
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長期にわたる意識障害を持つ患者のためのセンター: 国際的な予備地図
Simona Ferioli1, Caroline Schnakers2, Alfonso Magliacano3
1Department of Neurology and Rehabilitation Medicine, University of Cincinnati, Cincinnati, Ohio, USA.
Brain injury
|August 29, 2025
まとめ
全世界の調査で 153の長期意識障害 (pDoC) 専門センターが特定され,家族や提供者のためのオンラインマップが作成されました. このリソースは,世界中のpDoC患者の専門治療へのアクセスを改善することを目的としています.
科学分野:
- 神経科学
- リハビリテーション医学
- 医療管理
背景:
- 長期にわたる意識障害 (pDoC) の患者にとって,回復と合併症の管理を助けるために,専門的なケアが不可欠です.
- 専用のpDoCセンターの場所と範囲に関する既存の情報は,家族や提供者にとって不十分です.
- 専門の介護施設を詳細に記載する 集中的なアクセス可能なリソースが必要です
研究 の 目的:
- 長期にわたる意識障害 (pDoC) の患者のケアを専門とする国際的センターを特定し,マッピングする.
- pDoCに関与する家族,医療従事者,研究者のための公開可能なオンラインリソースを作成します.
- pDoCの介護の範囲と地域差を理解する.
主な方法:
- 2022年5月から2024年5月までの間に,脳損傷とpDoCケアの専門家に国際オンライン調査が配布されました.
- 調査にはセンターの特徴,患者集団,提供されるサービスに焦点を当てた17の質問が含まれていました.
- 回答は,ヨーロッパ/イギリス,アメリカ,その他の地域によって分析され,分類された.
主要な成果:
- 35カ国の153のセンターからデータが収集され,pDoC専門センターの最初の予備的な国際地図を形成しました.
- ほとんどのセンターは,あらゆる年齢と病因の患者を受け入れますが,滞在期間,アクセス,退院基準には地域差があります.
- 介護者の訓練とカウンセリングは,調査対象のほぼすべてのセンターで提供され,連絡先はIBIAのウェブサイトから入手できます.
結論:
- 開発されたオンラインマップは,pDoC患者の専門医療へのアクセスを改善するための重要な一歩です.
- 地理的な代表を拡大し,追加のケアセンターを特定するためにさらなる努力が必要です.
- 医療のアクセシビリティとpDoCにおける患者の成果を改善するために,協力とリソースの特定が不可欠です.
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