南米 の 男性 の 生活 費 と 生活 質 に 対する 重症 血友 症 の 影響: CHESS LATAM 研究 の 発見
J Evans1, T Burke2, M Skerritt1
1Prime HCD, Knutsford, Cheshire, England, UK.
Value in health regional issues
|August 29, 2025
まとめ
重度の血友病はラテンアメリカでは大きな経済的負担を及ぼし, 主要なコストドライバーは因子置換療法です. 失業による間接的なコストは 患者や介護者にも大きく影響します
科学分野:
- 血液学
- 健康 経済
- 珍しい 病気
背景:
- 重度の血友病 (AおよびB型血友病) は,深刻な社会経済的コストを伴う希少な出血症である.
- この負担を定量化することは 資源の配分と患者支援に不可欠です
研究 の 目的:
- アルゼンチン,ブラジル,チリ,コロンビアにおける重度の血友病の社会経済的負担を定量化するため
- 血友病の治療に伴う直接的な医療,非医療,間接的な費用を評価する.
主な方法:
- CHESS LATAM研究では,患者および医師から人口統計,臨床,および資源利用データを収集しました.
- 調査は2020年9月から2021年5月の間に実施された.
- 患者あたりの費用は12ヶ月のローカルユニットコストを用いて計算された.
主要な成果:
- 830人の患者のデータを分析し,153人の患者の調査が完了しました.
- 重度の血友病の年間費用は患者"人あたり10万4千米ドル以下と推定されています.
- 代謝因子治療はコストの99%を占め,間接的なコストは仕事の損失によって引き起こされた.
結論:
- ラテンアメリカでは重度の血友病が 深刻な問題となっています
- 治療費が優勢である一方で,失業に関連する間接的な費用は大きく,注意が必要である.
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