Hidradenitis Suppurativa を管理する患者のためのモバイルおよびウェブアプリの識別と評価:アプリストアとコンテンツ分析における体系的な検索
Caroline Glatzel1, Tassilo Dege1, Bernadette Glatzel1
1Department of Dermatology, Venereology and Allergology, University Hospital Würzburg, Josef-Schneider-Strasse 2, Würzburg, 97080, Germany, 49 931 201 26369, 49 931 201 26700.
JMIR mHealth and uHealth
|August 29, 2025
まとめ
高品質のモバイルヘルスケアアプリは ヒドラデネチス・スプーラティバ (HS) の管理に限られています 患者さんは医師よりも1つのアプリを高く評価し,異なる優先順位とデジタルHSツールの共同開発の必要性を強調しました.
科学分野:
- 皮膚科
- 医療情報学
- デジタル・ヘルス
背景:
- ヒドラデニティス・スプーラティバ (HS) は慢性炎症性皮膚疾患で,患者の苦痛と医療負担を大きく引き起こす.
- HSの管理と生活の質の改善には 早期診断と効果的な治療が不可欠です
- 最適でない治療法と診断の遅延が 患者と医療制度が直面する課題に寄与しています
研究 の 目的:
- ヒドラデニティス・スプーラティバ (HS) の患者向けに設計されたモバイル・ヘルス・アプリ (MHA) の品質を特定し評価する.
- 患者と医師の両方の視点から アプリの品質を評価する
- HS管理アプリに関連したユーザー体験と技術アフィニティを理解する.
主な方法:
- 組織的な検索で HSのMHAが特定され 広告や患者中心でないコンテンツは除外された.
- 2つの選択されたアプリは,標準化された評価スケール (MARS, uMARS, GMUQ) と技術相性ツールを用いて20人の医師と27人の患者によって評価されました.
- データ分析は,患者と医師の評価,可用性,技術相互作用を比較することに焦点を当てました.
主要な成果:
- HSに特異的なMHAは29のアプリケーションの初期プールから2つしか含まれていません.
- 患者はHSR-Patientsアプリを医師よりも有意に高く評価した (p=. 009),一方,EHSF-Hidradenitis Suppurativaアプリの評価は有意な違いを示さなかった.
- ユーザビリティの評価は患者と医師の間で有意に異なることはなかったが,患者は一般的により高い技術アフィニティを示した.
結論:
- 高品質のHS特有のMHAの利用は限られており,デジタルヘルスの改善ツールが必要であることを示しています.
- MHAの患者と医師の評価は異なるが,患者は使いやすさを優先し,医師は内容に焦点を当てている.
- 評価されたアプリのいずれも,長期的な利用に十分な可能性を示せず,すべての利害関係者が関与する参加型開発の必要性を強調しました.
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