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Epilepsy and Seizures: Overview01:24

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Epilepsy is a chronic neurological disease marked by recurrent, unpredictable seizures. These seizures are caused by abnormal electrical discharges in the brain, leading to behavior, sensation, or consciousness alterations. They can also cause transient impairment of awareness, interfering with daily activities.
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Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
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エピレプシー・スティグマ・セルフ・マネジメント・プログラムへの影響

Sarah Prieto1, Elaine T Kiriakopoulos2, Allyson Goldstein3

  • 1Memory and Aging Program, Butler Hospital, Providence, RI, USA; Warren Alpert Medical School of Brown University, Department of Psychiatry and Human Behavior, Providence, RI, USA.

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PubMed
まとめ

RISE ABOVEプログラムでは,を患っている人々 (PWE) にも利益があることが示されました. しかし,複数の交差するステグマを持つ人は,より少ない改善を示し, 適した介入の必要性を示唆しました.

キーワード:
行動介入インターセキショナリティ介入トップへ自己管理スティグマストレス管理

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科学分野:

  • 心理学
  • 公衆衛生
  • 神経科学

背景:

  • 認知されたスティグマは,エピレプシー (PWE) の患者を,特に疎外されたアイデンティティの交差点を持つ人々を著しく悩ませます.
  • RISE ABOVEプログラムは,PWEの汚名を和らげるためのオンライン介入として開発されました.
  • この研究は,RISE ABOVEプログラムの認識と結果にどのように影響を与えるかを理解するためにパイロットデータを分析しました.

研究 の 目的:

  • RISE ABOVEプログラムの信頼性とユーザーの期待に対する認識にどのように影響を与えるかを検討する.
  • RISE ABOVEプログラムに対するユーザー満足度に対する 交差するスティグマの影響を評価する.
  • RISE ABOVEプログラムを使用して,PWEにおける交差するスティグマと心理的社会的な結果との関係を調査する.

主な方法:

  • 米国13州で発作した20人の患者からの試験データによる二次分析.
  • 参加者は,エピレプシー以外にも,平均で2. 5のステグマを報告した.
  • 収集されたデータには,プログラム信頼性,期待,満足度,および心理的社会的な結果 (ストレス,自己効能,拒絶,孤独感,の汚名,社会的役割の満足度) がベースライン,介入後,および6ヶ月のフォローアップで評価されました.

主要な成果:

  • プログラムの信頼性はグループごとに一貫していましたが, 交差するスティグマが少ない個人が変化に対する高い期待を報告しました.
  • ストレス,社会的な満足度,拒絶,およびの汚名を有意に改善した (ヘッジスのg=0. 57 - 1.15)
  • 孤独感と社会的役割の満足度の持続的な改善は,主に交差するスティグマが少ない参加者に観察されました.

結論:

  • RISE ABOVEプログラムは, (PWE) 患者における汚名を伴う苦痛を軽減するための介入として有望であることを示しています.
  • RISE ABOVEプログラムの有効性を最適化するために,多重な汚名を被るPWEに合わせた適応が必要になるかもしれません.
  • 複雑な交差点を持つPWEに対する介入を精密にするためにさらなる研究が必要である.