家族を中心としたコアアウトカムセット
Joanna Craven1,2, Wesley W E S Theunissen3, Olivia O'Malley4,5
1University of Liverpool, Liverpool, UK.
The bone & joint journal
|August 31, 2025
まとめ
この研究では,ブレスレート治療を受けた発達性形症 (DDH) の乳児の家族中心の9つの重要なアウトカムが特定されました. 乳児の快適さや親の福祉を含むこれらの結果は,DDH介入のための研究データ収集を標準化します.
科学分野:
- 整形外科
- 小児科
- 健康 成果 研究
背景:
- ヒップ発育不形成症 (DDH) は,乳児における一般的な疾患である.
- ブラケット治療はDDHの標準的な介入ですが,研究では標準的な結果測定法がありません.
- 現存する研究成果は 家族の見解を完全に捉えていないかもしれません
研究 の 目的:
- DDHを患った乳児の治療について,家族を中心とした最低限のアウトカムセットを確立する.
- 研究データ収集は,乳児とその家族の全体的なニーズと経験を反映することを保証します.
主な方法:
- 広範な文献レビューと関係者調査により,潜在的な結果が特定されました.
- 国際的な専門家と患者代表が参加した2ラウンドのデルフィーコンセンサスプロセスは,結果リストを精製しました.
- 最終的なコンセンサス・ミーティングでは,コンセンサスに達しなかった結果が取り上げられました.
主要な成果:
- 最初,家族を中心とした合計14の結果が検討されました.
- 9つの成果がコンセンサスを達成し,最終的なコア成果セット (COS) を形成しました.
- 最終的なCOSは,幼児のアウトカム (清潔さ,睡眠,快適さ,発達,皮膚刺激,栄養) と家族のアウトカム (親の福祉,絆,情報へのアクセス) を含む.
結論:
- 開発された家族中心のCOSは,ブレスターで治療されたDDHの乳児を含むすべての試験に推奨されます.
- この標準化されたセットは,研究成果の質と比較性を向上させるでしょう.
- これらの特定された結果に関するデータを収集するためのツールを開発するには,さらなる研究が必要です.
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