Catherine Merton1,2, Angela Gwaltney3, Anna Booman1,4

  • 1Division of Genetics and Genomics, Boston Children's Hospital, Boston, Massachusetts, USA.

まとめ

アンジェルマン症候群 (AS) の家族では,親のストレスが高く,家族の生活の質 (FQOL) に影響を及ぼします. 親のストレスに 焦点を当てた介入は ASに苦しむ家族の 福祉を向上させるかもしれません

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