癌を体験した若者を対象に 魅力的で包括的な研究を目指す
Nicole Collaço1, Céline Bolliger2,3, Kirsten Efremov4
1School of Health Sciences, University of Southampton, Southampton, England.
Journal of clinical and translational science
|September 2, 2025
まとめ
がん研究に若者を巻き込むには 個人的な障壁や 組織的な障壁を取り除く必要があります 戦略には,関係性のある枠組み,アクセシブルな言語,インセンティブ,柔軟な形式,包括性と影響を高める多様な採用が含まれています.
科学分野:
- 腫瘍学
- 公衆衛生
- 医療サービス研究
背景:
- 癌を体験した若者との有意義な関わりは 影響力のある研究に不可欠です
- YAsの声が癌研究の成果を形作ることを保証することは,関連性と応答性にとって不可欠です.
研究 の 目的:
- がん患者の研究参加の障壁と促進要因を調査する.
- 癌研究をより包括的にし,YAのニーズに応えるための戦略を特定する.
主な方法:
- がん歴のある12人の若者 (21歳から43歳) を対象とした定性研究.
- フォーカスグループやインタビューで収集したデータを テーマ分析で分析した.
- 参加者はがん慈善団体や ソーシャル・メディアを通じて 募集されました
主要な成果:
- 個人的な障壁 (健康,物流,知識) とシステム上の障壁 (擁護,社会的/文化的影響) を特定した.
- 効果的なエンゲージメント戦略には 関連性のあるフレーム,アクセシブルな言語,価値の展示,インセンティブ,柔軟な形式 (オンライン調査,ビデオ) が含まれます.
- 信頼できる組織との連携や 多様な募集資料や ソーシャルメディアは リーチとインクルーシビリティを高めます
結論:
- 包摂的ながん研究への関与を実践するための戦略が提供されています.
- 研究者は早期に ソーシャル・メディアの関与や 患者と公衆の関与のための資金配分を検討すべきです
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