関連する実験動画

Updated: Sep 9, 2025

In Vivo Functional Study of Disease-associated Rare Human Variants Using Drosophila
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In Vivo Functional Study of Disease-associated Rare Human Variants Using Drosophila

Published on: August 20, 2019

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希少疾患臨床研究ネットワーク (RDCRN) のデータ共有経験,指導,リソース

Elaine Schwendeman1, Henry J Kaminski2, Adeline Vanderver3,4

  • 1Division of Biostatistics and Epidemiology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.

Clinical and translational science
|September 3, 2025
PubMed
まとめ

希少疾患の臨床研究ネットワークは 希少疾患のデータを共有し,参加者の権利とデータの完全性を確保するためのガイドラインを開発しました. これは共同研究を促進し,臨床と翻訳科学を前進させる.

キーワード:
データ共有データ使用に関する合意将来のデータ使用情報に基づく同意規制の遵守についてサブコントラクト

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