小児炎症性腸疾患における社会経済的負担の評価 - 家族と国内医療提供者の調査
Tejas S Desai1,2, Jesse Batara3, Matthew W Carroll1,2,3
1Stollery Children's Hospital, Division of Pediatric Gastroenterology and Nutrition, Edmonton, Alberta, Canada T6G 2B7.
Journal of the Canadian Association of Gastroenterology
|September 3, 2025
まとめ
小児炎症性腸疾患 (IBD) を患っている子供たちの家族は,大きな経済的,精神的な負担に直面しています. 医療従事者はこれらの影響を認識しているが,ケアにおけるギャップは残っており,小児性腸内疾患患者の支援と擁護の改善の必要性を強調している.
科学分野:
- 小児胃腸内科
- 健康 経済
- 公衆衛生
背景:
- 小児炎症性腸疾患 (IBD) の発生率は世界中で増加しています.
- 小児性IBDが家族に及ぼす社会経済的影響に関する研究は限られている.
- これらの負担を理解することは 患者の総合的なケアに不可欠です
研究 の 目的:
- IBDを患っている家族の社会的経済的負担を評価する.
- IBDの提供者の実践と認識を全国的に比較する.
- 乳幼児のIBD治療の質を向上させるための分野を特定する.
主な方法:
- 家族と医療提供者に2つの横断調査が行われました.
- 調査では 人口統計,経済的影響,ケアに対する認識が調査されました
- 統計とテーマ分析を用いてデータを解釈した.
主要な成果:
- 家族は,欠席した仕事/学校と食事の費用から重大な財政的負担を報告しました.
- およそ60%の家族が 精神疾患の問題を経験しました
- 提供者は社会経済的負担を認めるが,支援の変動を指摘した.
結論:
- この研究はカナダで初めて,小児性腸内炎症の国の医療従事者慣行と家族の社会経済的負担を調査したものです.
- 医療従事者の財政的負担の認識は 報告された家族の経験と相関しています
- 雇用,メンタルヘルス,自費費用の解決には 質改善のイニシアチブと支援が必要です
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