小児リウマチ学における視点と目標の変化

Over the past 25 years, the results of treatment in pediatric rheumatology have greatly improved due to enormous developments in medical therapies. Today, reaching inactive disease or remission has become a realistic aim. Controlling inflammation and avoiding damage still remain the most important issues. Scores and tools for the measurement of disease activity have mostly been designed to be applicable in studies. Priorities may be different in a patient's perspective. This paper illustrates the different perspectives from a patient's and physician's view, thus, trying to describe the requirement, potentials, and limitations of shared decision-making in children, adolescents and young adults suffering from rheumatic diseases.