中米における多発性硬化症エキスパート患者プログラム:生活の質とライフスタイルの習慣の変化
Emilia Arrighi1, Carlos Navas2, Natalia Vázquez1
1Centro de Innovación y Educación de Pacientes y Familias, Barcelona, Spain.
Aims:
To assess the impact of an Expert Patient Program on the quality of life and lifestyle habits of multiple sclerosis patients and their caregivers from Costa Rica, Honduras, and Dominican Republic.
Materials & Methods:
Quasi-experimental design, with repeated measures, without control group. The sessions taught self-care, problem-solving, nutrition, physical activity, fatigue, sleep, pain, and emotions. Data was collected using online questionnaires, such as the Short Version of the World Health Organization Quality of Life questionnaire. Data analysis included Student's t-test for related samples and Cohen's d.
Results:
65 cases, with 75.4% patients. Participants increased adherence to healthy lifestyle habits, physical activity, and reduced sedentarism. Those living with the disease for more than five years improved the physical (p = 0,019) and psychological domains (p = 0,008), while individuals with lower education levels improved their environmental domain (p = 0,005).
Conclusion:
This pilot study provides evidence supporting the impact of this Program on quality of life.
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