極早産児のケアにおける意思決定と診療のばらつきに関する国際的見解:ガイドラインは必要か
Rosa Geurtzen1, Simone Klijntjes2, Maureen Stegeman2
1Division of Neonatology, Department of Pediatrics, Amalia Children's Hospital, Nijmegen, Radboud University Medical Centre, Nijmegen, The Netherlands. Rosa.Geurtzen@radboudumc.nl.
Objective:
To examine international perspectives on the necessity of guidelines for the care of extremely preterm infants (EPIs), what forms such guidance should take, and the extent of practice variation neonatologists find acceptable.
Study Design:
Anonymous, online, cross-sectional international survey among neonatologists, exploring current and preferred guidelines and hypothetical scenarios testing acceptance of practice variation in EPI decision-making.
Results:
We analyzed 127 responses from 47 countries. Most respondents (55%) preferred a guideline using gestational age (GA) alongside other prognostic factors; 13% preferred no guideline. In scenarios involving borderline viability, variation was accepted when based on parental wishes, cultural norms, or resource constraints, but not when reflecting hospitals or individual differences. Views on directive counseling were divided.
Conclusions:
Neonatologists support flexible, structured guidelines that consider more than GA alone. Variation is acceptable when reflecting parental values, cultural norms, or resource constraints but not when driven by individual or institutional preferences.
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