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CLEFT-Qの日本語版の有効性を構築する:裂け目特有の患者報告結果アンケート
Makoto Hikosaka1, Shinji Kobayashi2, Ikkei Tamada3
1Division of Plastic Surgery, National Center for Child Health and Development, Setagaya, Tokyo, Japan.
まとめ
日本のCLEFT-Qは,割れ目の状態に関する患者の報告結果を効果的に測定し,心理的なものを除いてほとんどのスケールでコンストラクトの有効性を示しています. これは,患者中心のアウトカム評価のために日本での使用を支持します.
科学分野:
- 唇の裂け口と空口の研究
- 患者によって報告された結果指標 (PROMs)
- サイコメトリック・バリデーション
背景:
- CLEFT-Qは,裂け目を持つ個人の患者によって報告されたアウトカム測定法です.
- CLEFT-Qの日本語版の検証は,日本での臨床適用にとって極めて重要です.
- 構想の妥当性を評価するには,CLEFT-Qのスコアを主観的および客観的な評価と比較する必要があります.
研究 の 目的:
- CLEFT-Q.の日本語版のコンストラクションの妥当性を評価する.
- CLEFT-Qのスコアが,患者の報告した改善の欲求と,学校の出席/楽しさとどのように相関するかを決定する.
- CLEFT-Qのスコアと,クリニシャンによる裂け目関連アウトカムに関する客観的な評価を比較する.
主な方法:
- 将来の観察研究は,日本の5つの機関で実施されました.
- 唇裂け,上口裂け,胞裂けを患った8歳から17歳の111人が参加した.
- CLEFT-Qスコアは,参加者の自己報告したニーズと臨床医の客観的な評価と比較されました.
主要な成果:
- CLEFT-Qのスコアは,手術を希望する参加者,学校を楽しまない参加者,外見スケールで臨床医によって評価が悪い参加者に対して低いことが観察されました.
- CLEFT-Qの心理学的スケールは,主観的または客観的な評価と有意な関連性を示さなかった.
- 13のCLEFT-Qスケールのうち12のスケールで有意な相関が見出され,コンストラクションの妥当性を支持しました.
結論:
- CLEFT-Qの日本語版は,心理的スケールを除く13のスケールのうち12のスケールで良好なコンストラクット有効性を示しています.
- これらの発見は,日本における患者中心のアウトカム評価のための日本のCLEFT-Qの使用を検証しています.
- この研究は,日本の臨床実務と研究におけるCLEFT-Qの活用のための科学的基盤を提供します.
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