高度原発性脳腫瘍患者とその親族のための支援介入: スコーピングレビュー
Pernilla Ståhl1, Ingela Henoch2, Ramona Schenell3
1Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 100, 405 30, Gothenburg, Sweden; Department of Neurosurgery, Sahlgrenska University Hospital, Region Västra Götaland, Blå Stråket 5, Floor 3413 45, Gothenburg, Sweden.
まとめ
高度脳腫瘍に対する支援介入は,患者および親族にとって有望な結果を示し,生活の質と心理社会的成果を向上させています. 多くの介入は,まだ初期段階ですが,ポジティブな効果を示しています.
科学分野:
- 神経腫瘍学 神経腫瘍学
- 患者サポートサービス 患者サポートサービス
- 心理社会的腫瘍学
背景:
- 主要の高度の脳腫瘍は,患者とその家族にとって大きな課題を提示します.
- 効果的な支援介入は,これらの診断に関連する複雑なニーズを管理するために不可欠です.
研究 の 目的:
- 主要な高度脳腫瘍の患者およびその親族に対する既存のサポート介入を体系的にマッピングし,レビューする.
- 介入の種類,目標,報告された成果を特定する.
主な方法:
- 電子データベースと参照リストの体系的な文献検索.
- 2013年から2025年までの間に出版された記事を含む.
- データ抽出,凝縮,比較,および介入の特徴と結果の分類.
主要な成果:
- 個別支援,介護計画,リハビリテーション,心身ケア,教育を中心に 34 件の論文が掲載されました.
- 介入は患者,親戚,またはその両方を対象にしており,そのほとんどが両方のグループに利益をもたらしています.
- 患者 (症状,認知,心理社会的機能) および親戚 (生活の質,心理社会的結果,マスターシップ) に関するポジティブな効果が報告されました.
結論:
- 支援介入は,高度の脳腫瘍の患者およびその親戚にとって有望な結果を示しています.
- 介入は,様々な結果指標にポジティブな影響を及ぼし,生活の質と患者/相対的な自信を高めます.
- 積極的な結果にもかかわらず,多くの介入は早期の実施段階にあり,さらなる開発と普及の必要性を示しています.
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