発達障害児の親のエンパワーメントを促進するための共同設計の介入の実現可能性
Shazeen Suleman1, Puneet Parmar2, Deirdre Kelly Adams2
1Stanford University School of Medicine, Palo Alto, CA, United States; Temerty Faculty of Medicine, University of Toronto, Toronto, ON; MAP Centre for Urban Health Solutions, Unity Health Toronto, Toronto, ON, CA.
Academic pediatrics
|February 21, 2026
まとめ
この研究では,発達障害児の介護者のための介入を共同設計し,サービスへのアクセスとエンパワーメントを改善しました. このプログラムは,高い需要と受容性を示し,コミュニティを中心としたデザインの重要性を強調しました.
科学分野:
- コミュニティベースの参加型研究
- 人間中心のデザイン
- 介入開発・開発に関すること.
背景:
- 発達障害児の介護者は,リソースにアクセスする際に大きなストレスと課題に直面しています.
- 疎外された家庭は,支援システムのナビゲーションに困難を感じる.
研究 の 目的:
- 家族に対する社会的支援を増やすことを目的としたパイロット介入の共同設計とテストを行う.
- 親のエンパワーメントを促進し,発達障害のある子どものケアへのアクセスを向上させる.
- 開発された介入の需要,受け入れ,実施を評価する.
主な方法:
- コミュニティベースの参加型研究と人間中心のデザインの原則を採用した.
- 共同創造のためのコミュニティ組織と介護者諮問委員会と提携しています.
- 参加者の出席率,調査前と調査後の調査,半構造面接を通じてデータを収集します.
主要な成果:
- 11人の介護者アドバイザリーカウンセルは,電話チャットグループ,ツールキット,ワークショップの3つの部分からなる介入を共同開発しました.
- この介入は2つのサイトで実施され,55人の参加者が参加しました.
- 参加者は,ナビゲーションサービスにおけるエンパワーメントの増加を報告し,ワークショップとツールキットは特に効果的でした.
結論:
- 共同で開発した3つの部分からなる介入により,介護者のサービスアクセス,社会支援,エンパワーメントが改善されました.
- この介入は,高い受け入れ率と需要を示し,コミュニティを中心としたアプローチを検証しました.
- 地域社会との共同設計は,効果的で関連する介入の作成に不可欠です.
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