関連する実験動画

Updated: Feb 23, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

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SATB2関連症候群に関する臨床実務ガイドラインの優先順位付けテーマ: 方法論的厳密さ vs. 臨床的可用性

Charlotte Maria Wilhelmina Gaasterland1, Mirthe Jasmijn Klein Haneveld2, Barber Maria Tinselboer3

  • 1Leiden University Medical Center, Department of Clinical Epidemiology, Leiden, the Netherlands; European Reference Network on Rare Congenital Malformations and Rare Intellectual Disability ERN-ITHACA, Clinical Genetics Department, Robert Debré University Hospital, Paris, France.

Journal of clinical epidemiology
|February 21, 2026
PubMed
まとめ

SATB2関連症候群 (SAS) の臨床実務ガイドラインの開発には,コミュニティ主導の優先順位付けプロセスが含まれていました. この研究は,方法論的厳格さと,希少疾患に関する包括的で利用可能なガイドラインの必要性とのバランスをとるという課題を強調しています.

キーワード:
クリニカル・プラクティスのガイドライン欧州参照ネットワーク (European Reference Network) とはガイドラインの方法論優先順位付け 優先順位付け稀有病とは,珍しい病気である.体系的なレビューは,体系的な見直しを行います.

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