My Kidney T.R.E.K. - 患者の腎移植における思考、内省、およびエンパワーメント、テクノロジーを通じて
Julia C Dunbar1, Wanda Pratt1, Lily Jeffs1
1University of Washington, Seattle, WA.
AMIA ... Annual Symposium proceedings. AMIA Symposium
|February 23, 2026
まとめ
若年性腎移植患者は、自己管理のためのデジタルツールを必要としています。ストーリーテリングのプロトタイプは、青年期患者が健康ジャーニーを振り返るのに役立ち、慢性疾患管理のための自信と自己認識を高めました。
科学分野:
- 小児腎臓病学
- デジタルヘルス
- 青年医学
背景:
- 腎移植を受けた青年期および若年成人には、独立した自己管理への移行を支援する必要があります。
- 効果的な自己管理には、スキル構築と思考的内省の両方を促進するツールが必要です。
研究 の 目的:
- 青年期の移植体験に関する内省を促進することを目的としたデジタルプロトタイプの開発と評価。
- 青年期の慢性疾患自己管理のための将来のデジタルヘルスツールの設計に関する洞察を収集する。
主な方法:
- 内省のためのストーリーテリングを利用したデジタルプロトタイプが開発されました。
- このプロトタイプは、23人の参加者(青年期13人、介護者10人)で評価されました。
主要な成果:
- 参加者は、過去の経験を振り返り、現在の健康状態を理解し、将来を計画するために、このプロトタイプが価値があると感じました。
- 若年参加者は、移植後の健康管理における自己認識の向上と自信の増加を報告しました。
結論:
- デジタルストーリーテリングツールは、腎移植を受けた青年期の自己内省と自己管理を効果的にサポートできます。
- 慢性疾患を持つ若年者を対象とした将来のデジタルヘルス介入のための設計推奨事項が提供されています。
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