遺伝的差別:消費者の視点
E V Lapham1, C Kozma, J O Weiss
1Georgetown University Child Development Center, 3307 M Street, NW, Washington, DC, 20007-3935. laphamv@medlib.georgetown.edu
まとめ
遺伝的疾患は,差別と認識され,多くの個人が仕事や保険の拒否を恐れることにつながる可能性があります. この恐れは,遺伝子検査や遺伝子情報の開示を雇用者と保険会社に阻害しています.
科学分野:
- 遺伝学 遺伝学とは
- バイオエシック バイオエシック
- 公衆衛生は公衆衛生である.
背景:
- 遺伝疾患は多くの家族に影響を及ぼします.
- 遺伝的差別に関する懸念は高まっています.
- 患者の知覚を理解することは極めて重要です.
研究 の 目的:
- 遺伝的障害を持つ個人が経験する差別を調査する.
- 健康行動に対する遺伝的差別恐怖の影響を評価する.
- 遺伝的差別に関するさらなる研究の必要性を強調する.
主な方法:
- 遺伝子支援グループの332人のメンバーを対象に実施した調査.
- 101種類の遺伝疾患を持つ家族を含む.
- 保険と雇用における差別感の分析.
主要な成果:
- 25%が生命保険,22%が健康保険,13%が雇用を拒否された.
- 9%が差別を恐れて遺伝子検査を拒否した.
- 18%が保険会社に情報を隠し,17%が雇用者に情報を隠した.
結論:
- 認知された遺伝的差別は,影響を受ける個人にとって重要な問題です.
- 差別への恐れは,遺伝子検査と情報開示に関する決定に影響を与えます.
- 遺伝的差別の範囲を定量化するためにさらなる調査が必要である.
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