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口头同意的视听文档:为文盲人口提供知情同意的新方法
Oscar Benitez1, Dominique Devaux, Jean Dausset
1Guarani Indians Project, Paris, France. benitezoscartheo@aol.com
Lancet (London, England)
|April 30, 2002
概括
从文盲人群中获得知情同意是具有挑战性的. 本研究介绍了口头同意的视听记录,作为在不同社区进行伦理研究的可行方法.
科学领域:
- 生物伦理学生物伦理学
- 医学人类学 医学人类学
- 遗传学 遗传学 是一个
背景情况:
- 知情同意对于人类研究伦理至关重要.
- 传统的书面同意对于文盲人口来说是无法获得的.
- 在非识字社区记录同意存在挑战.
研究的目的:
- 为了评估口头同意的视听文档.
- 在基因研究中评估它对文盲人口的适用性.
- 提出它作为一个标准的道德程序.
主要方法:
- 视听文档 (视频,录音带,照片) 的口头同意.
- 在瓜拉尼印第安人项目中的应用,一项遗传研究.
- 适应巴拉圭瓜拉尼语参与者的知情同意程序.
主要成果:
- 在大约100名潜在参与者中,得到了42名参与者的同意.
- 视听方法促进了拒绝的行使.
- 超过一半的潜在参与者可以行使他们的拒绝自由.
结论:
- 口头同意的视听记录是文盲人群的一种实用方法.
- 这种方法确保了伦理的研究行为,并尊重参与者的自主权.
- 它在各种研究环境中提供了书面同意的可行替代方案.
关键词:
生物医学和行为研究研究.
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