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Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
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The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
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Ethics is a philosophical study of moral actions. Ethics attempts to determine what is valuable for individuals and society. It examines the rational justification of moral judgments and analyzes what is morally just, fair, and right. Bioethics is a sub-discipline of applied ethics that analyzes the philosophical, social, and legal issues in life sciences and medicine. Ethical theories serve as a foundation for decision-making and represent the viewpoints from which people seek direction. They...
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数据共享与隐私保护是相互排斥的吗?

Yann Joly1, Stephanie O M Dyke1, Bartha M Knoppers1

  • 1Centre of Genomics and Policy, McGill University, Montreal, QC H3A 0G1, Canada.

Cell
|November 19, 2016
PubMed
概括
此摘要是机器生成的。

在国际表观基因组研究中,新兴的战略保护了参与者的隐私. 这些包括公开同意,基因组捐赠,注册访问,自动化程序和增强隐私的技术.

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科学领域:

  • 遗传学
  • 生物信息学
  • 生物伦理学

背景情况:

  • 国际表观基因组研究产生敏感的基因组数据.
  • 保护参与者的隐私对于伦理研究行为至关重要.
  • 现有的隐私措施对于大规模的国际项目来说可能不够.

研究的目的:

  • 在国际表观基因组研究中审查和综合保护参与者的隐私的新战略.
  • 确定关键方法,使数据可访问性与强有力的隐私保护保持平衡.

主要方法:

  • 对当前隐私策略的文献审查.
  • 分析包括公开同意,基因组捐赠,注册访问,自动化程序和增强隐私技术的方法.
  • 综合发现以提供全面的概述.

主要成果:

  • 开放的同意模式提供了透明度,但需要仔细实施.
  • 基因组捐赠和注册访问提供了可控的数据共享框架.
  • 自动化程序和增强隐私的技术 (例如差别隐私) 提供了数据匿名和安全的技术解决方案.

结论:

  • 为了保护国际表观基因组研究的隐私,必须结合政策,同意和技术.
  • 未来的研究应该集中在这些新兴战略的实际应用和有效性上.
  • 为了在道德上推进基因组研究, 必须平衡数据共享需求与参与者的隐私.