在COVID-19期间照顾患有痴呆症的老年人:一项多州探索性定性研究
Kevin Yan1, Tonie Sadler2, Daniel Brauner3
1Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
概括
阿尔茨海默病 (AD) 和相关痴呆症患者的家庭照顾者通过开发弹性策略和修改护理来适应COVID-19的挑战. 政策变化和远程医疗等创新提供了潜在的好处,但需要进一步的支持.
科学领域:
- 老年学是一门学科.
- 公共卫生 公共卫生
- 社会学 社会学 社会学
背景情况:
- 家庭护理人员对于支持阿尔茨海默病和相关痴呆症的老年人至关重要.
- 随着COVID-19大流行,护理者面临了前所未有的挑战,影响了决策和日常生活.
- 了解疫情期间护理人员的经验对于改善支持系统至关重要.
研究的目的:
- 探索COVID-19大流行之前和期间的阿尔茨海默病和相关痴呆症的老年人家庭护理人员的经验和护理决策.
- 识别挑战,应对策略和护理人员的适应.
- 检查与流行病相关的创新和政策变化对护理人员负担和护理获取的影响.
主要方法:
- 对八个州的64名家庭护理人员进行了定性半结构面试.
- 该研究侧重于COVID-19大流行之前和期间的经验.
- 数据分析探讨了与沟通,应对,护理安排和创新相关的主题.
主要成果:
- 护理人员面临着与亲人和医护人员的重大沟通挑战.
- 适应性应对策略被用来平衡风险,保持通信,监督和安全,在流行病限制的情况下.
- 护理安排得到修改,对机构护理的决定有所变化.
- 护理人员反思了包括远程医疗在内的大流行引发的创新的好处和挑战.
- 一些政策变化对护理人员负担和护理准入产生了积极影响.
结论:
- 家庭护理人员在应对COVID-19流行病的复杂性方面表现出了显著的性和适应能力.
- 越来越多地使用远程医疗,需要改善互联网接入,并为认知障碍患者提供住宿.
- 公共政策必须更好地承认和支持家庭护理人员的基本,但被低估的劳动.
- 永久性政策变化可以提高护理的准入,并减少护理人员的负担,特别是对于那些管理阿尔茨海默病和相关痴呆症的人来说.
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