在芬兰,0至16岁的儿童有FASD演变的发育问题模式和干预成本
Laura Mirjami Jolma1,2, Mikko Koivu-Jolma3, Anne Sarajuuri4
1Faculty of Medicine, University of Helsinki, Haartmaninkatu 8, P.O. Box 63, 00014 Helsinki, Finland.
Children (Basel, Switzerland)
|May 27, 2023
概括
胎儿酒精谱系障碍 (FASD) 从婴儿期到青春期都存在重大挑战,包括新生儿护理率高,发育迟缓和精神问题. 在家以外的安置是常见的,并带来了相当大的成本.
科学领域:
- 儿科 儿科 儿科
- 神经发育障碍 神经发育障碍
- 公共卫生 公共卫生
背景情况:
- 胎儿酒精谱系障碍 (FASD) 是神经发育障碍的主要可预防的原因.
- 早期识别和干预对于改善FASD儿童的治疗结果至关重要.
- 关于FASD问题和相关成本的纵向数据对于有效的医疗保健规划至关重要.
研究的目的:
- 确定从出生到16岁的FASD个体的典型问题和干预措施.
- 估计不同发育时期的医疗保健和相关费用.
- 为患有FASD的儿童提供早期识别和干预策略的信息.
主要方法:
- 对55名被诊断患有FASD的个人进行了回顾性图表审查.
- 分析不同年龄组 (0-1,1-6岁,7-12岁,13-16岁) 的问题,干预措施和成本.
- 估计累计平均额外成本,包括与家庭以外的安置相关的成本.
主要成果:
- 新生儿重症监护,物理治疗和第一年先天性形的高率.
- 1-6岁之间职业治疗,语音治疗和眼的患病率.
- 随着年龄的增长,ADHD的诊断增加,需要特殊教育,学习障碍和精神病治疗.
- 在青少年时期,精神病单位治疗和智力残疾的显著率.
- 80%的个人被放出家门,占估计累计成本的78.5%.
结论:
- FASD与广泛的医疗,发育和行为问题有关,这些问题随着年龄的增长而演变.
- 家庭以外的安置是FASD患者的主要成本驱动因素.
- 了解典型的问题轨迹可以帮助早期识别,评估和对患有FASD的儿童进行干预计划.
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