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偏见扩大载体查:对荷兰网页进行话语分析
Sofia Morberg Jämterud1, Anke Snoek2
1Department of Thematic Studies, Technology and Social Change, Linköping University, 581 85 Linköping, Sweden.
Healthcare (Basel, Switzerland)
|May 27, 2023
概括
预见扩展载体查 (PECS) 网站经常强调科学事实,可能会掩盖夫妇面临的伦理和生存选择. 这有可能使关键的个人决策变得看不见.
科学领域:
- 遗传学 遗传学是一种遗传学.
- 生物伦理学生物伦理学
- 卫生沟通健康沟通
背景情况:
- 孕前扩展载体查 (PECS) 为未来的父母提供了有关遗传遗传条件的重要信息.
- 网站是理解PECS的越来越重要的资源.
研究的目的:
- 分析荷兰网站上关于PECS的信息中所呈现的基本理性和话语.
- 确定网站如何将潜在的父母与遗传查相关的位置.
主要方法:
- 采用了多模式的批判性话语分析.
- 分析了来自两个荷兰遗传学部门的公开网站数据.
主要成果:
- 确定了三个主导性话语:"风险和夫妇作为严重状况的调解者","关注科学事实和理性的怀孕者",以及"条件的严重性和负责任的夫妇.
- 分析揭示了网站如何构建PECS信息,影响风险感知和决策.
结论:
- 关于PECS的信息必须承认认识论 (知识) 和道德之间的相互作用.
- 在PECS信息中过度强调科学事实可能会使复杂的伦理和生存考虑对未来的父母看不见.
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