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新确诊的中国克罗恩病患者的症状体验:一项纵向定性研究
1School of Nursing, Zhejiang Chinese Medical University, Hangzhou, China.
克罗恩病的中国患者在诊断后一年内经历了负面情绪的减少和症状接受度的增加. 症状预警功能也在缓解期间减弱,突出显示了自我管理的需要.
科学领域:
- 胃肠病学 胃肠病学
- 质量健康研究 质量健康研究
- 患者体验 患者体验
背景情况:
- 克罗恩氏病 (CD) 是一种慢性炎症性肠病.
- 了解患者的体验对于有效管理至关重要.
- 在新诊断的中国CD患者中,关于症状感知的纵向数据有限.
研究的目的:
- 纵向探索在诊断后第一年内患有克罗恩病的中国患者的症状经历.
- 分析随着时间的推移症状感知,接受和功能的变化.
主要方法:
- 长度定性研究设计.
- 在四个时间点 (诊断,3,6,12个月) 对18名新诊断的中国CD患者进行半结构面试.
- 传统的内容分析应用纵向.
主要成果:
- 三个主题出现了:对症状的感觉 (不适,自卑,无助),症状的接受性 (困难,必要性,接受能力) 和症状的功能 (评估疾病/治疗,警告管理).
- 负面情绪减少,而症状接受度在第一年增加.
- 症状预警功能在疾病缓解期间减弱.
结论:
- 患者对症状的负面情绪减少,在克罗恩病诊断的第一年内,接受度增加.
- 症状感知进化,影响自我管理意识.
- 研究结果为护理干预提供了信息,以增强症状接受和减少负面情绪.
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