一个基于人权的框架,用于定性痴呆症研究.
Alicia Diaz-Gil1, Joanne Brooke2, Olga Kozlowska3
1Oxford Brookes University, UK.
Nursing ethics
|May 29, 2023
概括
这项研究引入了一个基于人权的框架,将痴呆症患者纳入定性研究. PANEL原则 (参与,问责,非歧视和平等,授权,合法性) 引导研究人员改善参与和成果.
科学领域:
- 老年学是一门学科.
- 定性研究方法 定性研究方法
- 生物伦理学生物伦理学
背景情况:
- 从历史上看,痴呆症患者一直被排除在定性研究之外,因为他们对表达自己的能力有误解.
- 研究机构经常采用一种父权主义的方法,导致过度保护和排斥性做法.
- 传统的研究方法可能本质上偏向于认知障碍的个体.
研究的目的:
- 解决痴呆症患者在研究中的排斥问题.
- 为痴呆症研究人员提供基于证据的框架.
- 促进将痴呆症患者纳入定性研究.
主要方法:
- 将人权的五项原则 - - 参与,问责制,非歧视与平等,赋权和合法性 (PANEL) - - 适应研究环境.
- 从现有文献中综合证据,以开发与痴呆症患者进行定性研究的框架.
- 创建基于 PANEL 原则的检查清单,以指导研究人员.
主要成果:
- 介绍了一个检查清单,包含与 PANEL 原则相关的问题.
- 检查清单解决了涉及痴呆症患者的定性研究的伦理,方法和法律方面的考虑.
- 该框架旨在加强以痴呆症患者需求为中心的研究设计.
结论:
- 拟议的检查清单促进了对痴呆症患者进行包容性定性研究的发展.
- 该框架由人权工作和痴呆症研究政策制定提供信息.
- 需要进一步的研究来评估检查清单在改善参与,伦理审批和结果相关性的有效性.
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