在地方层面提供多发性硬化症护理的标准化系统描述:一项示范研究
Hossein Tabatabaei-Jafari1, Nasser Bagheri1, Christian Lueck1,2,3
1From the Mental Health Policy Unit, Health Research Institute, Faculty of Health, University of Canberra, Canberra, ACT, Australia (HT-J, NB, MAF, JAS, LS-C).
International journal of MS care
|May 30, 2023
概括
澳大利亚首都地区对多发性硬化症 (MS) 患者的护理是分散的,依赖于一般神经病学服务. 缺乏综合的,专业的多发性硬化护理,突出需要改善服务协调.
科学领域:
- 神经学 神经学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 评估特定地区多发性硬化症 (MS) 护理服务的情况.
- 识别服务模式作为更广泛评估的基础.
研究的目的:
- 评估和描述澳大利亚首都地区多发性硬化症 (MS) 患者的服务模式.
- 为全面评估多发性硬化症护理提供建立基准.
主要方法:
- 采用医疗保健生态系统方法,使用长期护理服务和目录的描述和评估 (DESDE-LTC) 工具.
- 基于目标人群的分类服务:具体的MS,一般神经病学,公共/私营和社会/卫生部门.
主要成果:
- 对于患有多发性硬化症的人来说,只有有限的服务可供使用.
- 缺乏提供协调,多学科,综合性MS护理的当地设施.
- 特定于MS的子专业服务很少 (6/28);依赖邻国服务是常见的. 只有4%的服务在核心卫生部门之外.
结论:
- 澳大利亚首都地区的多发性硬化症 (MS) 护理是分散的,严重依赖于一般神经病学服务.
- 建议更广泛地采用DESDE-LTC用于标准化的MS服务分类,使得比较和监控成为可能.
- 标准化分类可以促进跨区域的比较,随着时间的推移,以及与痴呆症或精神障碍等其他疾病的服务进行比较.
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