确定被诊断患有炎性肠病的患者的信息和支持需求:一个范围审查
Narges Norouzkhani1, Mahbobeh Faramarzi2, Sara Ghodousi Moghadam1,3
1Department of Medical Informatics, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.
Frontiers in psychology
|May 30, 2023
概括
本综述探讨了炎症性肠病 (IBD) 患者的信息和支持需求,以提高他们的生活质量. 关键发现强调了饮食信息和IBD患者的教育支持的重要性.
科学领域:
- 胃肠病学 胃肠病学
- 卫生科学 卫生科学 卫生科学
- 患者护理 患者护理
背景情况:
- 炎症性肠病 (IBD) 显著影响患者的生活质量.
- 有效的慢性疾病管理需要强有力的患者教育和支持.
- 了解患者需求对于改善护理标准至关重要.
研究的目的:
- 系统地审查有关炎症性肠病 (IBD) 患者信息和支持需求的现有文献.
- 为了确定特定的患者需求,可以提高生活质量.
- 确定有关IBD护理患者需求的文献上的空白.
主要方法:
- 一种基于Daudt框架 (Arksey和O'Malley的修改) 的范围审查方法.
- 从2000年1月到2022年4月,在四个电子数据库 (PubMed/Medline,CINAHL,APA PsycInfo,心理学和行为科学收藏,APA PsycArticles,ProQuest) 进行了广泛的搜索.
- 手动搜索"炎症性肠病杂志"和"克罗恩氏和结肠炎杂志".
主要成果:
- 审查了75项研究,重点关注IBD患者的信息和支持需求.
- 62项研究解决了信息需求,其中饮食是主要关注点.
- 53项研究重点关注支持需求,确定教育需求是最关键的.
结论:
- 研究结果可以为卫生政策制定者和管理人员提供信息,帮助他们为IBD患者制定有针对性的护理和教育计划.
- 胃肠病学家作为主要信息来源发挥着关键作用,并应领导患者教育和共享决策.
- 解决确定的信息和支持需求可以改善IBD患者的整体生活质量.
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