探索慢性疼痛和疼痛管理视角:基于网络的健康社区帖子的定性试点分析
Claire Harter1, Marina Ness1, Aleah Goldin1
1Inspire, Arlington, VA, United States.
JMIR infodemiology
|May 30, 2023
概括
社会倾听揭示了慢性疼痛患者的挑战,包括疾病负担和治疗障碍. 来自在线平台的洞察力可以为美国食品和药物管理局提供信息.
科学领域:
- 医疗信息学 医疗信息学
- 患者报告的结果
- 社交媒体分析 社交媒体分析
背景情况:
- 患者的观点对于美国食品和药物管理局 (FDA) 的医疗产品评估至关重要.
- 传统的沟通道可能无法接触到所有患者.
- 社交媒体提供了对患者治疗和疾病的经验的见解,包括慢性疼痛.
研究的目的:
- 探索基于网络的患者平台,了解慢性疼痛治疗的挑战.
- 确定慢性疼痛患者及其护理人员所面临的障碍.
主要方法:
- 从基于网络的平台分析非结构化患者数据.
- 使用预定义的关键字和标签 (#ChronicPain) 识别关键主题.
- 从2017年1月1日至2019年10月22日之间的职位收集数据.
主要成果:
- 共同的主题包括疾病负担,需要支持,宣传和诊断.
- 慢性疼痛显著影响了情绪,身体活动,工作,睡眠和社交生活.
- 片类药物/麻醉剂和设备 (TENS,脊髓刺激器) 是经常讨论的治疗方法.
结论:
- 社会倾听数据提供了宝贵的患者和护理人员的观点.
- 在线数据可以揭示未满足的需求,特别是在耻辱化的条件下.
- 这种方法提高了FDA对不同患者声音的理解.
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