检查研究团队如何在以患者为中心的结果研究中管理不同的观点和优先事项:嵌入式多个案例研究的结果
Maureen E Maurer1, Tandrea Hilliard-Boone1, Karen Frazier1
1American Institutes for Research (AIR), Chapel Hill, North Carolina, USA.
概括
患者和利益相关者参与以患者为中心的结果研究在协作决策上壮成长. 通过早期和持续的共识建立信任,促进了一个包容的环境,即使在导航不同的观点.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和利益相关者参与
- 协作决策 - 合作决策
背景情况:
- 关于影响研究团队在以患者为中心的结果研究中谈判不同观点的患者和利益相关者参与实践的证据有限.
- 了解这些动态对于有效的研究设计和进行至关重要.
研究的目的:
- 探索患者和利益相关者参与实践,支持或阻碍研究小组在谈判不同的观点.
- 在以患者为中心的结果研究中确定合作决策的有效策略.
主要方法:
- 采用了多个嵌入式描述性案例研究设计,分析了由以患者为中心的结果研究院 (PCORI) 资助的六项研究.
- 通过采访32名研究人员和利益相关方 (患者,护理人员,临床医生) 和审查研究相关文件,收集数据.
主要成果:
- 研究人员认为,纳入不同观点是一种优势,而不是障碍. 利益相关者群体之间和内部出现了观点的差异,通常是伦理或务实的.
- 在所有研究中都采用了协作决策,称为共识 (谈判,妥协).
- 鼓励共识的策略包括促进小组讨论,灵活性,引用共同目标和委托决策. 对于未解决的问题,使用了关系维护方法.
结论:
- 早期启动并在整个研究过程中保持的协作决策,可以在研究人员和合作伙伴之间建立信任.
- 这种信任确保了合作伙伴感到被倾听和重视,即使在导航困难的决策,培养包容和尊重的文化.
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