残疾和血友病的社会影响
Montserrat García-Ripoll1, Hortensia De la Corte-Rodríguez2
1Department of Social Work, Fedhemo.
概括
治疗血友病 (一种出血障碍) 不仅包括医疗治疗. 它需要身体,情感和社会福祉的终身策略,得到医疗保健专业人员和患者团体的支持.
科学领域:
- 血液学 血液学 血液学
- 心理学 心理学 心理学
- 社会科学 社会科学 社会科学
背景情况:
- 血友病和其他凝血病需要超越医疗治疗的综合管理.
- 个人在整个发展过程中面临终身的身体,情感和社会挑战.
研究的目的:
- 概述管理血友病多面性挑战的基本策略.
- 强调支持系统和整个生命周期的适应的重要性.
主要方法:
- 该研究综合了来自血液学,康复,骨科,心理和社会方法的信息.
- 它强调了患者协会和残疾认可的作用.
主要成果:
- 早期生活需要培养自尊和沟通,以促进健康的发展.
- 晚年生活需要适应残疾和依赖,促进独立和社会融合.
- 患者协会对于减轻社会影响至关重要.
结论:
- 整体的,多学科的方法对于改善血友病患者的生活质量至关重要.
- 支持性策略和社会认可是成功的长期管理和整合的关键.
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