在患有突发心脏骤停风险增加的患者中,感知到自我有效性和赋权
Brianna Davies1, Katherine S Allan2, Sandra L Carroll3
1Centre for Cardiovascular Innovation, St. Paul's and Vancouver General Hospitals, University of British Columbia, Vancouver, BC, Canada.
Frontiers in cardiovascular medicine
|May 31, 2023
概括
获得遗传咨询和检测的机会对患有遗传性心脏病 (ICC) 个体的赋权和自我效能产生重大影响. 然而,有限的心理服务机会会影响患者的治疗结果.
科学领域:
- 心脏病学 心脏病学
- 遗传学 遗传学 是一个
- 心理社会健康 心理健康
背景情况:
- 多学科诊所对于遗传性心脏病 (ICC) 的心理护理至关重要.
- 加拿大各个诊所的医疗保健准入情况各不相同,影响患者应对和管理.
- 在ICC中,专科护理准入和患者自我管理之间的关系未得到充分研究.
研究的目的:
- 描述ICC患者的服务获取情况.
- 探索参与者特征,心脏病史,健康状况,自我效能和赋权之间的联系.
- 调查遗传咨询和测试对患者结果的影响.
主要方法:
- 采用Hearts in Rhythm Organization (HiRO) 注册表进行的跨界社区调查.
- 收集了来自加拿大235名ICC患者及其家属的数据.
- 使用一般自我效能度量 (GSE) 评估自我效能,使用遗传咨询结果度量 (GCOS-24) 评估赋权.
主要成果:
- 63%的参与者有遗传咨询师参与;获得遗传测试与更高的赋权相关 (p=0.004).
- 不确定的遗传测试结果与较低的自我有效性 (p=0.01) 有关.
- 较低的心理健康得分与自我效能和赋权的降低相关;只有11%的人获得了心理学服务.
结论:
- 资源可访问性和临床病史的变化影响了ICC患者的自我效能和赋权.
- 建议通过解决这些差异来改善患者结果的干预措施.
- 加强对遗传咨询和心理支持的访问对于管理ICC至关重要.
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