在巴西参考中心的多学科服务中,用于肌缩侧面硬化症的远程医疗
Emanuela Coriolano Fidelix1,2, Glauciane Costa Santana1,2, Daniele Montenegro da Silva Barros2
1Universidade Federal do Rio Grande do Norte, Departamento de Medicina Integrada, Natal RN, Brazil.
Arquivos de neuro-psiquiatria
|May 31, 2023
概括
远程医疗是一个可行的选择,用于肌缩性侧面硬化症 (ALS) 护理,显示出高患者和护理人员的满意度. 这种方法特别有利于那些患有晚期疾病或生活远离治疗中心的人.
科学领域:
- 神经学 神经学
- 医疗信息学 医疗信息学
- 康复医学 康复医学 康复医学
背景情况:
- 远程医疗为管理各种疾病提供了好处,包括肌缩性侧面硬化症 (ALS).
- 随着COVID-19大流行,人们更加需要远程医疗来维持医疗保健的准入.
- 社会距离措施强调了远程医疗保健解决方案的重要性.
研究的目的:
- 评估使用远程医疗在肌缩侧面硬化症 (ALS) 多学科护理的可行性.
- 评估患者和护理人员对ALS管理的远程医疗服务的满意度.
主要方法:
- 使用Teleconsulta平台进行回顾性队列研究进行了评估.
- 包括患有至少一次面对面诊断的ALS患者.
- 对患者和护理人员进行了满意度调查问卷.
主要成果:
- 该研究包括46名患有ALS的患者 (32名男性,14名女性).
- 医疗保健服务的平均距离为115公里,表明需要远程选择.
- 呼吸系统支持和调整是通过远程医疗解决的最常见问题.
结论:
- 远程医疗是提供多学科ALS护理的可行和受欢迎的方法.
- 患者和护理人员对远程医疗的满意度很高,特别是在晚期疾病或远程生活的人群中.
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